Who we are

Thalassaemia International Federation (TIF) is a non-profit, non-governmental patient-driven organisation founded in 1986 and established in 1987. TIF is patient-driven organisation working in official relations with the World Health Organization (WHO) since 1996.


  • An umbrella organisation with a participation of 120 national thalassaemia associations and other members from 57 countries across the world (data correct as of July 2016).
  • Collaborates with relevant departments of the WHO, European official bodies/agencies, over 30 national, 13European and 4 international disease- orientated patients’ organisations, 28 pharmaceutical industries and agencies, and 6 official professional medical associations with an interest or relevance to haemoglobinopathies.
  • To-date has organized
    • 152 delegation visits in 52 countries worldwide;
    • 68 national, 14 regional and 28 international educational events (conferences, workshops and seminars) participated by 40,000 health professionals, patients and parents from 62 countries.

About the TIF website

About TIF and its work

Presentation about TIF

Organisational structure


Presentation Past, Present, Future of TIF

Global public health paradigm



Audited Accounts

In 2015, the overall proportion of industry and non-industry funding for TIF was 31.88% and 68.09% respectively, with the highest contribution of a single company being 17.85%. Click here to see TIF's audited accounts.