The PBSA was established following a hearing at the European Parliament in 2002 on threats to blood supply in Europe, attended by representatives of eight patients’ organisations. The founding organisations of the PBSA, although representing a diverse range of diseases, share the common goal to advocate for the highest level of blood safety for all in Europe.
The mission of the PBSA is to advocate for the highest standards of blood safety for all in Europe. It acts as advocate for the fundamental right and duty to safety of all patients in need of blood transfusions and blood products, and aims to become a point of reference for national health authorities and European institutions regarding the patient’s perspective on blood safety.
The first PBSA Board of Directors was elected in 2005 and consists of representatives of patients’ organisations from Austria, Cyprus, Italy and the United Kingdom. TIF President Mr Panos Englezos was elected as its first Chairman.
PBSA is registered as a non-profit non-governmental organisation in Cyprus, with its offices hosted by the Nicosia headquarters of the Thalassaemia International Federation.
For more information about PBSA, its goals and activities, and how to become a member of PBSA, please visit www.pbsalliance.org
Important documents:
- Quality Systems for Blood Safety. Aide-Memoire for National Blood Programmes
- Blood Safety. Aide-Memoire for National Blood Programmes
- Blood Transfusion Safety: Information Sheet for National Health Authorities
Founding Organisations
- European Cancer Patient Coalition – ECPC / Selbsthilfe Prostatakrebs
- European Haemophilia Consortium – EHC
- European Organisation for Rare Diseases – Eurordis
- Hepatitis Hilfe Österreich (Hepatitis Aid Austria) – Platform Gesunde Leber (Healthy Liver Forum) – HHOe-PGL
- International Myeloma Foundation – IMF (UK)
- Sickle Cell Society (UK)
- Thalassaemia International Federation – TIF (Cyprus)
Contact PBSA:
Pan-European Blood Safety Alliance
PO Box 28807
2083 Nicosia
Cyprus
Tel: +357 22 319 129
Fax: +357 22 314 552
Email: info@pbsalliance.org
