This conference gathered together over 700 participants - 500 health professionals and 200 patients/parents - from 30 countries of the targeted regions and the importance attached to this educational event is reflected through the participation of His Excellency the Minister of Health of Vietnam, Representative of ASEAN and SEARO WHO.
As for the Programme of the conference, it was divided into two parts running simultaneously:
1) The Scientific Programme which focused on scientific medical advances as well as reviews on existing progress in addressing the prevention and management of haemoglobin disorders, and
2) The Patients’/Parents’ Programme which addressed the needs for education, awareness and capacity building of patients in the region.
The significance of the Patients’/Parents’ Programme is today more and more important, as we now live in the era of patient-centered healthcare reforms and patient involvement in decision-making in the health sector is very important. Patients however, need to be knowledgeable and competent in order to have a stronger and more reliable voice, as well as an important role in advocating and for achieving changes.
The topics were covered by 40 national, regional and international experts and at the end of the conference a joint declaration and an outcome of the Conference to move forward and continue this effort was signed by the participants and delivered to the Ministry of Health of Vietnam and the WHO of the SEAR and WPR regions.