With increasing specialization in thalassaemia treatment, our patients are being treated by a larger and more diverse group of medical professionals. Among these, the nurse has a very special role and a different, but equally valuable, contribution to patient care.

The thalassemia nurse is often the bridge between the specialists, and is likely to be the one member of the healthcare team who spends a lot of time with each patient. In fact, in some countries, the nurse may be the main or only health professional seen by the patient. She or he is an important source of information and advice.

The special bond between patient and nurse can be a powerful motivating force for the patient, particularly with chronic diseases needing lifelong care and multi-faceted support. This relationship is worth encouraging due to its potential to improve health outcomes and foster a positive outlook.

The creation of the Global Nurses’ Network establishes a platform for nurses to share experiences and ideas with colleagues involved in the field from across the world. A major objective of the Network is to develop Guidelines on the management of Hb disorders from the nurses’ perspective.

The network has been initialised in 2009 and several nurses have already been identified to become founding participants of the project.

Join the Network!

If you are interested in joining the Nurses’ Network please fill in the information form and send it to TIF at:

Thalassaemia International Federation
PO Box 28807
2083 Nicosia
Cyprus
Tel: + 357 22 319 129
Fax: + 357 22 314 552
Email: thalassaemia@cytanet.com.cy

 

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