Thalassaemia International Federation | A non-profit, non-governmental patient-driven organization, founded in 1986

INVITATION from the President Panos Englezos and the Board of Directors of TIF

Join us to strengthen efforts globally: Creation of the Global Network of Patients' Organisations and Medical Specialists in Haemoglobin Disorders

The creation of networks of collaboration constitutes the major activity and a most valuable tool for our Federation, to obtain useful information and true facts about the health and other care services for our patients, and of course to promote its mission and objectives, which is the promoting of equal access to quality healthcare for every patient across the world.

Through such networks, close collaborations are built between and amongst health professionals and patients / parents, allowing the extension of TIF's educational program and dissemination of its publications. Through such networks, friendships are built, difficulties, problems and concerns are identified, but also successes and experiences are shared and cherished.

TIF is promoting:
A. The Global Network for those countries not clearly defined or appropriately falling within WHO or within regional networks defined by TIF.
B. The European Network.
C. The Middle-East Network
D. The Asian Network
E. The American

How the Global Network will work

Four (4) Regional Networks are to be formed (already two are finalized) with the same general objectives, benefits and responsibilities (see Regional Networks)
Each Regional Network will include common but also different objectives based on the needs of each region
Each Regional Network will form a Steering Committee (SC) and the SC of each regional network will be represented in the GLOBAL network SC.
The number of the members of the Steering Committee should be relatively small (up to 10) in order to be more effective (5 patients and 5 health professionals).
The Global Network will meet every two years during TIF's biannual international conferences
The Regional Network will meet when regional conferences are taking place (also biannually)
If its necessary TIF office will organise teleconferences to address important issues of the network with the members of the SC
The main means of communication will be through e-mails
The Members of the Network will have a number of benefits and number of responsibilities
Members that fail to follow the responsibilities will be automatically deleted from the Network and will not be able to receive the benefits of the network.
TIF's website will include detailed information for each regional network, its members (at their consent) and its activities
All thalassaemia associations' members of TIF are automatically (by definition) members of the network of the region they belong to, by just completing the network registration form.
Health professionals in order to be automatically members of the network they need to be already associate members of TIF, otherwise they need to complete the membership forms

Benefits:

Receive publications from TIF (change and as priority)
Support your work in your country / region
Priority in sponsorship programs
Priority in the participation of TIF's or TIF supported educational events
Support to the activities and particularly the educational program at the national and regional level

Responsibilities:

Communicate the national, regional status/problems/success on a regular basis
Participate and contribute to delegation visits / field trips and other high level meetings of the Board or its advisory board, focused on promoting the effective control of haemoglobin disorders.
Contribute to TIF's educational programs including publications
Support all of TIF's efforts in the region for the promotion of national country programs.

TIF has developed the European and the Middle East network and is in preparation of the Asian and American networks.

Join the Network!

If you are interested in joining this network please download and fill in the relevant application form: