Thalassaemia International Federation
PO Box 28807
2083 Nicosia
Cyprus
Tel: + 357 22 319 129
Fax: + 357 22 314 552
Email: thalassaemia@cytanet.com.cy
Business hours: 9am - 3pm (Monday–Friday GMT+2)
TIF member associations
Please note this section only contains links to those member associations that have websites.
Albania
Albanian Thalassaemics Association ATA (Voting)
Argentina
Thalassaemia Foundation of Argentina FUNDATAL
Australia
Australian Thalassaemia Association (Voting)
Thalassaemia Society of New South Wales (Voting)
Thalassaemia Society of Victoria Inc.
Azerbaijan
Association Parents of Children with Thalassaemia Savad Dunyasi (Voting)
Azerbaijan Thalassaemia Society INSAN (Voting)
Bahrain
Bahrain National Hereditary Anemia Society (Voting)
Bangladesh
Bangladesh Thalassaemia Society (Voting)
Bangladesh Thalassaemia Foundation
Thalassaemia Welfare Centre Bangladesh
Belgium
Association Belge de Thalassémie ASBL
Association Belgo-Mediterranéenne de Lutte Contre la Thalassemie
Brazil
Associacao Brasileira dos Thalassaemicos ABRASTA (Voting)
Bulgaria
Bulgarian Anti-Thalassaemia Organisation BATA (Voting)
Thalassaemics' Organisation in Bulgaria TOB
Cambodia
Cambodian Thalassaemia Association
Canada
Thalassaemia Foundation of Canada (Voting)
The Vancouver Thalassaemia Society of B.C.
China
Childrens Thalassaemia Foundation Ltd (Voting)
Thalassaemia Association of Hong Kong
Cyprus
Pan-Cyprian Antianaemia Association (Voting)
Egypt
Egyptian Thalassaemic Friends Association (Voting)
France
Association Francaise de Lutte Contre les Thalassaemies
Germany
Thalassemia Verein Ulm
Interessengemeinschaft Sichelzellkrankheit und Thalassaemia e.V.
Greece
Thalassaemia Federation of Greece (Voting)
Thalassaemia Association Korinthou
India
Thalassaemics India (Voting)
Federation of Indian Thalassaemics
Foundation Against Thalassaemia, regd.
Indian Association of Blood Cancer & Allied Diseases
Mumbai Thalassaemic Society
National Thalassaemia Welfare Society (Regd)
Parents Association Thalassaemic Unit Trust
Research Society of BJW Hospital for Children
Thalassaemia & Sickle Cell Society of Bombay
Thalassaemic Children Welfare Association
Thalassaemia Society of India
Indonesia
Yayasan Thalassaemia Indonesia (Voting)
Iran
Charity Foundation For Special Diseases (Voting)
Iranian Thalassaemia Society (Voting)
Esfahan Thalassaemia Society
Iraq
Ninava Thalassaemia Society, Mosul (Voting)
Iraqi Thalassaemia Association
Israel
Israeli Association of Thalassaemia & Sickle Cell Anemia (Voting)
Italy
Association Veneta per la Lotta alla Talassemia AVLT (Voting)
Associazione Talassemici e Drepanocity Lombardi ONLUS (Voting)
Fondazione Italiana ''L. Giambrone" per la Guarigione dalla Talassemia (Voting)
Associazione Ligure Talassemici
Associazione lotta allaTalassemia di Ferrara
Associazione Talassemici Torino
Nuova Associaz. Talassemici Italiani
Jordan
Jordanian Thalassaemia & Hemophilia Society (Voting)
Lebanon
Chronic Care Center (Voting)
Luxembourg
Etudier Comb. les maladies de l' haemoglobin
Malaysia
Federation of Malaysian Thalassaemia Societies (Voting)
Johor Thalassaemia Society
Persatuan Thalassaemia Malaysia
Pulau Penang Thalassemia Society
Maldives
Society for Health Education (Voting)
Malta
Thalassaemia Awareness Maltese Association
Morocco
Thalassaemia-Haemoglobin Diseases Association (Voting)
Nepal
Nepal Thalassaemia Society (Voting)
Netherlands
OSCAR Netherlands
Pakistan
Pakistan Thalassaemia Welfare Society, redg. (Voting)
Thalassaemia Society of Pakistan (Voting)
Abbotonians Medical Association
Kashif Iqbal Thalassaemia Care Centre
Pakistan Blood Transfusion Services
Thalassaemia Federation of Pakistan
Thalassaemia Patients & Parents Society of Pakistan
Palestine
Palestine Avenir Foundation (Voting)
Thalassaemia Patients' Friends Society TPFS (Voting)
Philippines
Mindanao Thalassaemia Foundation Inc
Portugal
Associacao Portuguesa de Pais e Doentes com Hemoglobinopatias
Romania
Asociata Persoanelor cu Thalasemie Majora (Voting)
Singapore
Club Rainbow Thal. Major Support Group
Thalassemia Society (Singapore)
South Africa
South African Thalassaemia Association (Voting)
Spain
Spanish Thalassaemia Association ALHETA
Sri Lanka
Kurunegala Thalassaemia Association (Voting)
Syria
Thalassemia Patients and Hereditary Blood Diseases (Voting)
Taiwan
Taiwan Thalassaemia Association
Thailand
Thalassaemia Foundation of Thailand (Voting)
Trinidad
Society for Inherited & Severe blood Disorders
Tunisia
Alphatt Tunisie (Voting)
Turkey
Akdeniz Thalasemi Dernegi (Voting)
TADAD Thalassaemia Patient Parent Association (Voting)
Thalassaemia Federation of Turkey (Voting)
Foundation of Mediterranian Blood Disease
United Arab Emirates
Emirates Thalassaemia Society (Voting)
UAE Genetic Diseases Association
United Kingdom
North England Bone Marrow & Thalassaemia Association NEBATA (Voting)
United Kingdom Thalassaemia Society (Voting)
Oscar Sandwell
United States of America
Cooley's Anemia Foundation (Voting)
Patient resources
Thalassaemia Patients and Friends
Sickle Cell Society, UK
Sickle Cell Disease Association of America
European Patients Forum (EPF)
International Alliance of Patients' Organizations (IAPO)
Sickle Cell and Thalassemia Patients Network, US
PatientView
European Organisation for Rare Diseases (EURORDIS)
Blood - the vital connection
International Federation of Blood Donor Organizations
Medical resources
HIV information from WHO
HIV and Hepatitis
International Consortium for Blood Safety (ICBS)
International Society for Blood Transfusion (ISBT)
Blood safety information from WHO
ITHANet web portal for thalassaemias and haemoglobinopathies
European Genetics Foundation
American Society of Hematology – Find a Hematologist
THAL-Lab, Italy
European and international organisations
European Medicines Agency (EMEA)
US Food and Drug Administration (FDA)
European Public Health Alliance (EPHA)
European Platform for Patients' Organisations, Science and Industry (EPPOSI)
EU Executive Agency for Health and Consumers (EAHC)
European Organisation for Rare Diseases (EURORDIS)
Drug Information Association (DIA)
EU Rare Diseases Task Force
World Health Organisation (WHO)
WHO main site
Non-communicable diseases
Global Collaboration on Blood Safety (GCBS)
WHO regional offices:
Africa
Americas
South East Asia
Europe
Eastern Mediterranean
Western Pacific