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Organiser: Thalassaemia International Federation

The Thalassaemia International Federation (TIF) is a non-profit, non-governmental organisation founded in 1986 and in official relations with the World Health Organization (WHO) since 1996. TIF is an umbrella organisation representing national thalassaemia associations and other members from 56 countries.

Our mission is to obtain equal access to quality care for every patient with thalassaemia across the world. To achieve this, we undertake a wide range of activities:

• We act as the united voice of patients with thalassaemia worldwide, supporting existing patients/parents’ associations and encouraging the establishment of new ones
  
  
• We work with national health authorities, supporting their efforts to make appropriate quality treatment available to all patients, as well as in the formulation of effective prevention strategies
  
  
• We prepare and distribute up-to-date, reliable and unbiased information about thalassaemia, its prevention, management and research for cure, for patients, parents, health professionals and the community
  
  
• We educate patients, parents, health professionals, the general public and policy-makers
  
  • Our internationally recognised educational programme includes several educational conferences and workshops each year, as well as an extensive range of books and other information materials
  • Since 1989, our events held at local, national and international levels have benefited over 20,000 participants, and our publications have been translated into up to 20 languages and distributed around the world
  • Our educational programme is supported by an ad hoc advisory panel of experts, as well as an extensive international network of around 200 scientific and medical collaborators from over 45 countries
• We work with health-related organisations and official bodies at national, regional and international levels to promote control programmes in affected countries
  • Our close collaboration with WHO recently resulted in the adoption of resolutions EB118.R1 on thalassaemia and WHA59.20 on sickle cell anaemia, and we are now working towards the worldwide implementation of these resolutions.

Go to TIF’s home page to find out more about our mission and activities.