International Thalassaemia Day 2016

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We are delighted to present you the 2016 theme for the 8th of May activities which is:

‘Access to Safe & Effective Drugs in Thalassaemia’.

This year’s theme highlights the need to support policy decisions that safeguard health and reduce inequalities in the health field. TIF’s mission is to ensure equal access to quality health care for all patients, so that they receive appropriate treatment and drugs, free of charge or reimbursed by the government, and in concurrence with the guidelines and standards of international experts.

With this message you are kindly requested to send us your plans of action for the 8th of May 2016 through completing the following form.

or alternatively by sending them to us at thalassaemia-va@thalassaemia.org.cy

We will also devote a weebly blog for our members to share their plans for the 8th of May. We invite you to share your ideas for the day.

International Photography Contest 2016

Photography contest

Thalassaemia International Federation (TIF) is organising a Photography competition for the year 2016, with the aim of creating awareness about thalassaemia, in the context of the International Thalassemia Day, celebrated each year on May 8.

Participation in this contest is open for all ages, and all countries across the world

Deadline
The deadline for the competition is Tuesday, 30 April 2016.

Subject
The subject of this photography contest is based on this year’s theme for the International Thalassaemia Day

The prizes granted by Thalassaemia International Federation for this competition are the following:
The first winner – $ 500,
The second winner – $ 300
The third winner – $ 100

Submissions

Submissions should be sent to thalassaemia-va@thalassaemia.org.cy with the name and surname of the participant as well as the title of the photography contest title in the subject of the email.

For further clarifications, please contact Thalassaemia International Federation (TIF) at thalassaemia-va@thalassaemia.org.cy or 00357 22 319 129

Click here for the Terms and Conditions of this contest.

Click here for the FAQ section.

Anthem translated and sung in English for this year’s International Thalassaemia Day!

As some of you may already know, an anthem for thalassaemia has been created in Greek by Mr. George Theofanous, a world renowned composer, musician, and lyricist. The music for this anthem was composed by him and the lyrics were written by Mr. Stavros Stavrou. This composition was sung by the children of his Musical Workshop and it was presented for the first time during TIF’s formal‪ Musical Evening and ‪Gala Dinner, entitled Precious Rubies, held at the Presidential Palace on 6 May 2015 to honour last year’s International Thalassaemia Day.

We are delighted to share with you that this anthem has now been translated and sung in English! You can listen to it by clicking the following link:

We invite you to translate them into your language, so that we can spread the joyous and hopeful message conveyed by the anthem to all those affected by thalassaemia for the International Thalassaemia Day 2016.

Closing, we would like to express a special thank you to Mr George Theophanous, our Musical Ambassador for his support and contribution to advocating the rights of thalassaemia patients.

Journalist Workshop

We are delighted to share with you that the Workshop held on May 16, 2016 at the Journalists’ House in Nicosia was completed with great success. The workshop was organized by the International Federation of Thalassaemia (TIF) in the context of the International Day Thalassemia, which is honoured on May 8th, in collaboration with the Union of Cyprus Journalists, and the support of the Cyprus Alliance for Rare Diseases (CARD), and the Pancyprian Federation of Patients and Friends (POSPF).

The purpose of the workshop was to discuss and exchange ideas and experiences on the role of patients in promoting health issues to the media.

The keynote speaker at this workshop was the world renowned journalist from BBC, Mr Matthew Hill, with which TIF has developed a close and lasting partnership. BBC is certainly and undoubtedly one of the largest news agencies worldwide with a long history of accurate and timely medical journalism.

Among the key speakers were also Mrs Lela Kesidou, Medical Journalist / TV Presenter at the Greek channel, ERT 3 with a long and highly successful career in the field of medical journalism.

The Workshop was also attended by the Honorable Minister of Health of Cyprus, Dr. George Pamporides.

Click here to view the video of the Workshop.

Click here to read the speech of Mr Panos Englezos.

Click here to read the speech of Dr Androulla Eleftheriou.

Click here for the Presentation of Mrs Chrysta Ntzani

Click here for the Presentation of Mrs Lela Kesidou

Click here for Matthew Hill’s Presentation

Toolkit available!

Click here for the poster.

Click here for the banner.

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